Showing posts with label clinical trial. Show all posts
Showing posts with label clinical trial. Show all posts

Sunday, September 2, 2012

Special Deliveries.

How could I be so blessed?  I have such an 
awesome wonderful support team!  When I 
went to my mailbox, there was yet 
ANOTHER card from one of my besties.  
While we are certainly loving every 
moment of our weekend, 
in the back of my mind is the fact that 
Mike's test results are cooking at the 
oncologist's office.  Part of me wants 
the good news of those results this 
moment and the other part of me, the part 
that is fighting with Mike's high blood pressure, 
does not evenwant a little tiny peak.  
Anyhow, our family will be faced with reality 
on Tuesday when we receive the results 
determining our Dad's continued participation 
in the clinical trial.  In the meantime, I 
continue to skip over to the mailbox, 
think about the sweet prayers and thoughts
 of our family and friends, and bury myself 
in the busyness of the comings and goings 
of each day.  

Here's to mailboxes, cards, prayers, good
thoughts, hugs, kisses, sunshine, 
singing . . . 

Wednesday, August 22, 2012

Words of Encouragement.

Encouragement has taken on a WHOLE new
meaning for me over the past year.  I cannot
tell you how much it lift my spirits to 
receive a simple text or phone call during
the day.  It is AMAZING to realize all of
the people who are interceding on behalf 
of our family.

Today was no exception.  I received texts
an emails with the exciting news that
friends and family members were praying
for our Dad during this trial.  A sentence 
from a friend goes a LOOOOOONG way.
It is so incredibly wonderful to know that
we are not in this storm alone.
As if a text is not enough . . . it is incredible
to scamper out to the mailbox and have an
uplifting card in the mail from a besty.  We
are incredibly blessed to have such wonderful
people in our corner.  We know that each
of them has been chosen by God to be
with us as prayer warriors and supporters
during our trial.

The BIG day is August 31.  Mike has
a PET/CT scan on that day.  We will
receive the results after Labor Day weekend.
The results will determine whether or
not we will be eligible to continue with
the clinical trial.

Onward.comrades.

Wednesday, August 8, 2012

Strippin'!

Woohoo!  My new vintage CHRISTmas 
fabric jellyroll strips arrived today!!  You
can just imagine the little peck on the
cheek that I gave my FEDEX guy after
he delivered this bundle of joy right
to my doorstep!!  In between my other 
quilts, caring for hubs and the boys,
writing that dissertation, and caring for
our home . . . I am goin' to be strip piecing
a CHRISTmas quilt that will adorn our
home during the holidays!  CHRISTmas is
only 138 days away for those of you
who aren't counting!!!

Hubs had day one off today from our
clinical trial.  Tomorrow we will 
celebrate day number two off and then
on Friday we will resume the fun
with our five days on again.  I do
so love the five on two off schedule.
It allows us to catch up on all that we
missed while Dads was sleeping.  We
are thinking that the tiredness may have
subsided a tiny bit and are praying that
next week only gets better.  We are
more than grateful that his blood
pressure is now under control, allowing
us to participate in the clinical trial.

Sunday, August 5, 2012

Santa's Workshop

Now that chapters 1-3 are cooking again,
I have a few moments to breathe and
catch up on CHRISTmas projects!!!
You can find me blaring my Broadway
tunes and praise music down in 
the workshop.  . . . grateful for this little
respite from typing, thinking, and reading!

Husband has doc appointments the
first three days of the week, which
always keeps us hopping!  I am excited
that we have been able to continue
with the clinical trial even if my man
is more than a wee bit tired!!

Blessings for a wonderful week!!!

Saturday, August 4, 2012

Yum! Yum!

White chocolate . . . peanut butter . . .
marshmellows . . . milk chocolate chips . . .
rice crispies!!

Need.I.say.more?

Today we started week two of the clinical
trial.  We had two glorious days off.  Mike
finally woke up the second night.  It was
fun having him watch the Olympics
with his eyes open and snuggle on the 
couch.  When we took the pills this
morning, I told him that I would see
him on Wednesday!!!

Thursday, August 2, 2012

Time Out.

 Thanks to my BFF Susan, I actually stood
up . . . got dressed like a big girl . . .
 stood up from typing my dissertation 
proposal and went do a little shopping . . .
 talked girl talk . . . shed a few tears . . . 
shared TONS of laughs . . . 
and had a fun little dinner at my new
fave spot Cafe Rio.

I have NEVER been through anything
like this before in my entire life.  I have
remotely known others at church who 
have gone through similar trials, but I
can tell you one.thing:  Family and
friends cannot be underestimated for
their support.  Sometimes it just takes
someone to pull you by the hair and
drag you out of the house even for
a few moments . . . it does the soul
wonders.

Mike finally woke up a little bit
late this afternoon and evening.  We
celebrated the fact that he was up
and reminded ourselves that it is
back to TK1258 in the morning.
Holy.cow.  It was great to sit with
him and watch the Olympics and to
share a meal.  On the positive side,
I will have five days to type, type,
type while he sleeps away as one
of the dramatic side effects of 
this treatment.  My dissertation 
proposal is progressing nicely and I
plan to resubmit it by the beginning
of next week.  I am really pleased
with the progress.

Onward.comrades.

Tuesday, July 31, 2012

The Trial Continues.


TK1258 has succeeded in kicking my
dear husband's behind the past several
days.  He is tired, tired, tired . . . drug 
through the keyhole tired.  A couple of
other not so pleasant symptoms have also
presented themselves!  We are excited,
however, as we have the next TWO days
off from treatment.  We have had several
fun cozy days around our new home and
have been excited to support our Dad 
as he began this clinical trial.

Smoothies are just about the only thing
that sounds good to our Dad.  He works
on finishing them throughout the day.
Mango seems to be his favorite and we
are only to eager to provide them for
him.  As a result of being homebound,
our family has really enjoyed the
Olympics together this year as well
as the rain that hit our rooftops last 
night and today.

We continue to count our many
blessings, especially our supporters
in our family and friends.  Thankfully,
new mercies and hope come each
morning and give us all that big
jolt that we need in order to help our
Dad through the day.

I have gotten oodles done on my
dissertation and should be ready to
submit my proposal to my mentor
by the end of the week or the beginning
of next for certain.  It has been a 
crazy couple of days for sure as we
miss our Luke.  It is waaaaay to quiet
around these parts for us . . . 

Here's to TWO days off!!!
Onward.comrades.